What is Lichen Sclerosus?

A question I get asked constantly, when I mention what Dr. Newman does with stem cell treatments besides cosmetic purposes.

When I began my journey as a Patient Care Coordinator (one of several hats I have the privilege of wearing at Dr. Newman’s office), I did not know the magnitude that would come with this specific title.

I never knew I would come to work and feel like I had a part in helping someone’s life change, help them see hope, see a light. Working for a doctor that specializes in cosmetic surgery you would assume things remain in the cosmetic category. This particular cosmetic office has many outlets, which is what makes it so extraordinary. One thing I know for certain, I work for a doctor that cares for his patients, he wants to help them have better quality of life in more ways than one. I know this because one of the hats I don on the daily involves getting to know patients at a personal level, patients that don’t want to get a treatment, but literally, have to. Patients who have a debilitating, horrifying, auto-immune disease called Lichen Sclerosus.

What is Lichen Sclerosus? It is an autoimmune disorder that attacks the genitalia, and I mean, attacks. I’ve heard the worst and the best (which is still horrible) case scenarios of patients who are affected by it. It can change the way the person lives, breathes and how they plan their daily lives. Pants become a burden, which seems crazy to most as they are worn every day by everyone else. Sitting down for long periods of time? You can forget about it. Certain foods can bother you, physical activity and your everyday routine is highly affected by this disease.

Promising New Lichen Sclerosus Treatment, Finally!

“What is Lichen Sclerosus?” is a question many of our patients first asked long before they found us.  Often that first lichen sclerosus diagnosis foreshadowed a very difficult path.  Like most of our patients, I had never heard of lichen sclerosus before I began working here, I had absolutely no idea what it was. I quickly dove into research as I knew I needed to understand what it was, how it came about, and how Dr. Newman treated Lichen Sclerosus (LS) with the Stem Cell Lift.   Not only did I learn how awful LS is, but I learned the benefits of stem cells as treatment for Lichen Sclerosus, I learned how Dr. Newman who is also a Board Certified Dermatologist, decided a few years ago, to take stem cells from the person’s own fat tissues, as he was doing for scarring from cancer and face lifts back then, and inject them into the affected area of LS. I also learned that his first patient is now in complete remission. The news cannot get any better than that.

Dr. Newman, a pioneer in stem cell treatment, has come up with a treatment for Lichen Sclerosus that has shown very promising results and given hope when all seems lost. I have had the pleasure of getting to know many of Dr. Newman’s patients on a personal level; I feel blessed to get to hear their stories and then proceed to meet them in person when they come in to have the procedure, or consult with Dr. Newman. It is amazing to me that one glimmer of hope, can be the start of a whole new world and a future. I hear comments and read them within the private Lichen Sclerosus Facebook group that I administer. I see downfalls, uplifts and continuous updates, I find that I learn beyond what I ever imagined from each of their battles, fights, and wins over this horrible disease and I can hear and see their pain, struggles and triumphs.  If you or someone you know has lichen sclerosus and would be interested in joining our private Facebook group where members can ask questions and read comments and dialog from others with the disease, go to our Facebook page at: www.facebook.com/DrNathanNewman and leave a message requesting to be added to the group.

To Help Them have a Life Again

I think I finally understood the magnitude of how awful this disease is when I had one of my first phone consultations with a potential patient of ours. I listened to her story, how long she had had it (20+ years) and how it had not only changed her marriage, (intercourse was not an option) but her quality of life. Jeans, sitting, standing, walking, using the restroom- all things that are no second thoughts to you and I, were seen as the enemy to her. Suddenly I realized how truly sad this was, how terrible it was. And then I unexpectedly became grateful. Grateful that I worked in an environment that wanted to help these women, to help them have a life again. This particular woman cried more so when she mentioned how happy she was that she had stumbled upon our website. She said she had googled and googled, “treatment for Lichen Sclerosus,” and finally saw Dr. Newman. She said it was an answer to prayer. To her hopes, to her dreams and to her life that she felt wasn’t worth living with this silent, not deadly, but could be to her, disease that had control of her life in all ways. In decisions for plans, in if she could go to work that day, if she could go to a park with her kids, I mean the list goes on and on.

It’s a true blessing to be involved with an office that is constantly striving forward, and continuing to treat Lichen Sclerosus, and researching and bringing it to the attention of whoever may need it.

Up until recently, the question “What is Lichen Sclerosus?” was often followed by very little encouraging information.  Now, that is all changing.  If you are familiar with this debilitating disease or have questions, please feel free to contact our office via phone or e-mail.

Signing off,

Misty